In need of prayers...

I don't even know where to begin....my cousin Nick and his wife Sarah adopted a sweet boy in desperate need of love and a family over 5 years ago, his name is angel. a very brief background from something his wonderfull momma wrote..."He is missing most of his small intestine since birth and receives all of his nutrients through the IV in his chest. He also has a G-tube in his tummy for meds. 30-something surgeries, 400 plus days in the hospital, and 4 years with a new family produced this little boy with the most zest for life I have ever seen. He has never been in a bad mood. EVER. He is our little miracle!" this doesn't even begin to describe this amazing child!!! He has had his ups and downs of course but in the last 5 years they have had him this child has thrived! They said he wouldn't live until his 5th birthday and since he has even started school! he now has a lil brother ( hudson 3 1/2 ) and they have been blessed with a 3rd baby, a girl!, due in about 5 weeks. They have said that in the 5 years they have had Angel they have never been in fear for his life but twice now...this last december and now. But now he is so bad it's hard to even explain. He is in liver failure, so bad that the doctors said he needs to be listed on the transplat list last week and very high up! in medical terms... " The Total Bilirubin (Tbili) is what we track to follow the significance of Angel's liver failure. It can often be seen visually by how yellow or jaundiced he is. One's Tbili should be below 1. Prior to these last 9 months, the highest we'd ever seen Angel's Tbili was 13. In November before we switched out his central line we saw it get up to 23. "
as of yesterday his total is 38.3!!!! bad is considered 3, so it's bad very bad. The family has been in isolation for weeks now because of his immune system, a simple cold could be devastating so even hudson can't leave in fear he too could catch something and bring it home, all this with a new baby almost here. So I'm asking for any and all prayers for this sweet boy and his amazing family that I am also proud to call my family. Pray that he's strong enough to get a transplant and that one becomes available (that too is sad because that means tragedy for another family :( ) and pray for the family with the new baby and that they can all pull through this, thank you. Here's some pics of the fam....Angel is really that yellow because of the liver failure....and Sarah is an amazing photographer and took these pics!




pray also for all the many sick children in the world...

xoxo <3, Nicole & Co.